~Rumi

All day I think about it, then at night I say it. Where did I come from, and what am I supposed to be doing? I have no idea. My soul is from elsewhere, I'm sure of that. And I intend to end up there...Who looks out with my eyes? What is the soul? I cannot stop asking. If I could taste one sip of an answer, I could break out of this prison...I didn't come here of my own accord, and I can't leave that way. Whoever brought me here will have to take me home.

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27 November 2014

Be the Cook, Not the Turkey: A Nurturing Thursday post by Meg Evans

Getting together with family over the holidays reminds us to feel thankful for our many blessings. It's a busy time, though, and people often get stressed out by extra chores and disrupted routines. So, in addition to giving to others, we need to keep in mind the importance of taking good care of ourselves. Then we can enjoy taking part in the delicious feast without feeling as if we've been cooked like the turkey!

Creative Commons image via Flickr (click photo for link)

Busy crowds and holiday music on store loudspeakers may be okay in small doses, but often they leave us needing to rest and recharge. Meditation, reading, and long walks in nature are ideal for relieving stress and getting into a reflective state of mind. This week I've been reading The Way is a River of Stars, in which the author describes walking the pilgrims' route on the Camino de Santiago. The book is a gentle, peaceful narrative with the cozy feel of a handmade quilt; all the details have been carefully arranged and lovingly stitched together.

Keeping up with regular exercise routines during the holidays is important not just to maintain weight, but to feel healthier in general. Familiar routines make our lives more predictable and less stressful; and when we don't let ourselves get too busy for them, we're sending a powerful message to the subconscious mind that things are under control. Exercise also gets the heart rate up and leaves us feeling invigorated and energetic!

And last but not least: Set aside time each day for personal projects such as crafts and writing, even if it's only a few minutes. We live in a culture that often dismisses our creative impulses as nothing more than unimportant hobbies, fantasies, and obsessions. But even if we never make any money following our dreams, they are precious anyway because that's how the authentic self flourishes by coming out to play!

Nurturing Thursday was started by Becca Givens and seeks to give this planet a much needed shot of fun, support and positive energy. Visit her site to find more Nurturing Thursday posts and a list of frequent contributors.

14 November 2014

Poem by Scott Lentine: Just a Normal Day



Never knowing what to say

Never knowing what to do

Always looking for clues

Just a normal day

Feeling unsure

Totally perplexed with everyday life

Always on edge never certain

I wish I could lift this curtain

Needing to constantly satisfy my need for information

Always online searching for new revelations

Going from site to site

Obtaining new insights every night

Trying to connect with people my age

Attempting to reveal my unique vision

But ending up alone and unengaged

Feeling like my life needs a total revision

Just a normal day


If you would like to read more of Scott's poetry, check out his website by clicking here.

01 October 2014

Autism Healthcare Accommodations Tool!



The AASPIRE Healthcare Toolkit is now fully functional, including the Autism Healthcare Accommodations Tool (AHAT)!

Check out AASPIRE's web site to explore information and worksheets intended for adults on the autism spectrum, supporters, and healthcare providers. It focuses on primary healthcare, or healthcare with a regular doctor.



04 September 2014

Conceptions of Autism 4.0 Survey

Flickr/Nicola/Research - IMG_1367

(Image description: Several people in a coffee shop seated at barstools with window views. The main focus is of a person sitting on a sizable brown leather chair, in the middle of the shop, using their computer for research.)

Autistic researcher and neurodiversity advocate, Steven Kapp, along with fellow researchers, has designed an online training on knowledge of autism. The training aims to represent up-to-date "scientific knowledge" about autism, including ideas drawn from the neurodiversity movement. It is rare for training studies on autism to intentionally include Autistic people though this study is open to all adults. The study gives opportunities to critique measures and training, as a major part of the study is to see which aspects of "scientific knowledge" are considered relevant or true.

Check it out by clicking the link below! (The study takes about an hour and must be completed in one sitting.)

Conceptions of Autism 4.0 Survey
www.surveymonkey.com

Gooooo Steven! Hip hip hooray!

--
Update:

The screen reader-accessible version has been verified.

With images:
https://www.surveymonkey.com/s/ConceptionsAutism

Without images: https://www.surveymonkey.com/s/AutismScreenReader

06 January 2014

24 November 2013

This Is Why Poor People's Bad Decisions Make Perfect Sense

 
Photo by thisisbossi


Below is a blog post on poverty that was published via The Huffington Post. Though poverty and disability are separate topics, the two often go hand in hand. The author's honest straightforward writing style, while tackling a heartbreaking issue that has no easy answers, touched me and got me thinking more deeply about how we define living life, and what it takes to ensure that all of humanity has access to equality, happiness, and fulfillment while we're here on earth doing what we refer to as living life.

Click here to be taken directly to the Huff Post printing. Or you can read it reprinted here:

There's no way to structure this coherently. They are random observations that might help explain the mental processes. But often, I think that we look at the academic problems of poverty and have no idea of the why. We know the what and the how, and we can see systemic problems, but it's rare to have a poor person actually explain it on their own behalf. So this is me doing that, sort of.
Rest is a luxury for the rich. I get up at 6AM, go to school (I have a full course load, but I only have to go to two in-person classes) then work, then I get the kids, then I pick up my husband, then I have half an hour to change and go to Job 2. I get home from that at around 12:30AM, then I have the rest of my classes and work to tend to. I'm in bed by 3. This isn't every day, I have two days off a week from each of my obligations. I use that time to clean the house and soothe Mr. Martini and see the kids for longer than an hour and catch up on schoolwork. Those nights I'm in bed by midnight, but if I go to bed too early I won't be able to stay up the other nights because I'll fuck my pattern up, and I drive an hour home from Job 2 so I can't afford to be sleepy. I never get a day off from work unless I am fairly sick. It doesn't leave you much room to think about what you are doing, only to attend to the next thing and the next. Planning isn't in the mix.
When I got pregnant the first time, I was living in a weekly motel. I had a minifridge with no freezer and a microwave. I was on WIC. I ate peanut butter from the jar and frozen burritos because they were 12/$2. Had I had a stove, I couldn't have made beef burritos that cheaply. And I needed the meat, I was pregnant. I might not have had any prenatal care, but I am intelligent enough to eat protein and iron whilst knocked up.
I know how to cook. I had to take Home Ec to graduate high school. Most people on my level didn't. Broccoli is intimidating. You have to have a working stove, and pots, and spices, and you'll have to do the dishes no matter how tired you are or they'll attract bugs. It is a huge new skill for a lot of people. That's not great, but it's true. And if you fuck it up, you could make your family sick. We have learned not to try too hard to be middle-class. It never works out well and always makes you feel worse for having tried and failed yet again. Better not to try. It makes more sense to get food that you know will be palatable and cheap and that keeps well. Junk food is a pleasure that we are allowed to have; why would we give that up? We have very few of them.
The closest Planned Parenthood to me is three hours. That's a lot of money in gas. Lots of women can't afford that, and even if you live near one you probably don't want to be seen coming in and out in a lot of areas. We're aware that we are not "having kids," we're "breeding." We have kids for much the same reasons that I imagine rich people do. Urge to propagate and all. Nobody likes poor people procreating, but they judge abortion even harder.
Convenience food is just that. And we are not allowed many conveniences. Especially since the Patriot Act passed, it's hard to get a bank account. But without one, you spend a lot of time figuring out where to cash a check and get money orders to pay bills. Most motels now have a no-credit-card-no-room policy. I wandered around SF for five hours in the rain once with nearly a thousand dollars on me and could not rent a room even if I gave them a $500 cash deposit and surrendered my cell phone to the desk to hold as surety.
Nobody gives enough thought to depression. You have to understand that we know that we will never not feel tired. We will never feel hopeful. We will never get a vacation. Ever. We know that the very act of being poor guarantees that we will never not be poor. It doesn't give us much reason to improve ourselves. We don't apply for jobs because we know we can't afford to look nice enough to hold them. I would make a super legal secretary, but I've been turned down more than once because I "don't fit the image of the firm," which is a nice way of saying "gtfo, pov." I am good enough to cook the food, hidden away in the kitchen, but my boss won't make me a server because I don't "fit the corporate image." I am not beautiful. I have missing teeth and skin that looks like it will when you live on B12 and coffee and nicotine and no sleep. Beauty is a thing you get when you can afford it, and that's how you get the job that you need in order to be beautiful. There isn't much point trying.
Cooking attracts roaches. Nobody realizes that. I've spent a lot of hours impaling roach bodies and leaving them out on toothpick pikes to discourage others from entering. It doesn't work, but is amusing.
"Free" only exists for rich people. It's great that there's a bowl of condoms at my school, but most poor people will never set foot on a college campus. We don't belong there. There's a clinic? Great! There's still a copay. We're not going. Besides, all they'll tell you at the clinic is that you need to see a specialist, which seriously? Might as well be located on Mars for how accessible it is. "Low-cost" and "sliding scale" sounds like "money you have to spend" to me, and they can't actually help you anyway.
I smoke. It's expensive. It's also the best option. You see, I am always, always exhausted. It's a stimulant. When I am too tired to walk one more step, I can smoke and go for another hour. When I am enraged and beaten down and incapable of accomplishing one more thing, I can smoke and I feel a little better, just for a minute. It is the only relaxation I am allowed. It is not a good decision, but it is the only one that I have access to. It is the only thing I have found that keeps me from collapsing or exploding.
I make a lot of poor financial decisions. None of them matter, in the long term. I will never not be poor, so what does it matter if I don't pay a thing and a half this week instead of just one thing? It's not like the sacrifice will result in improved circumstances; the thing holding me back isn't that I blow five bucks at Wendy's. It's that now that I have proven that I am a Poor Person that is all that I am or ever will be. It is not worth it to me to live a bleak life devoid of small pleasures so that one day I can make a single large purchase. I will never have large pleasures to hold on to. There's a certain pull to live what bits of life you can while there's money in your pocket, because no matter how responsible you are you will be broke in three days anyway. When you never have enough money it ceases to have meaning. I imagine having a lot of it is the same thing.
Poverty is bleak and cuts off your long-term brain. It's why you see people with four different babydaddies instead of one. You grab a bit of connection wherever you can to survive. You have no idea how strong the pull to feel worthwhile is. It's more basic than food. You go to these people who make you feel lovely for an hour that one time, and that's all you get. You're probably not compatible with them for anything long-term, but right this minute they can make you feel powerful and valuable. It does not matter what will happen in a month. Whatever happens in a month is probably going to be just about as indifferent as whatever happened today or last week. None of it matters. We don't plan long-term because if we do we'll just get our hearts broken. It's best not to hope. You just take what you can get as you spot it.
I am not asking for sympathy. I am just trying to explain, on a human level, how it is that people make what look from the outside like awful decisions. This is what our lives are like, and here are our defense mechanisms, and here is why we think differently. It's certainly self-defeating, but it's safer. That's all. I hope it helps make sense of it.
Additions have been made to the update below to reflect the responses received.
UPDATEThe response to this piece is overwhelming. I have had a lot of people ask to use my work. Please do. Share it with the world if you found value in it. Please link back if you can. If you are teaching, I am happy to discuss this with or clarify for you, and you can freely use this piece in your classes. Please do let me know where you teach. You can reach me on Twitter, @killermartinis. I set up an email at killermartinisbook@ gmail as well.
This piece has gone fully viral. People have been asking me to write, and how they can help. After enough people tried to send me paypal money, I set up a gofundme. Find it here. It promptly went insane. I have raised my typical yearly income as of this update. I have no idea what to say except thank you. I am going to speak with some money people who will make sure that I can't fuck this up, and I will use it to do good things with.
I've also set up a blog, which I hope you will find here.
Understand that I wrote this as an example of the thought process that we struggle with. Most of us are clinically depressed, and we do not get therapy and medication and support. We get told to get over it. And we find ways to cope. I am not saying that people live without hope entirely; that is not human nature. But these are the thoughts that are never too far away, that creep up on us every chance they get, that prey on our better judgement when we are tired and stressed and weakened. We maintain a constant vigil against these thoughts, because we are afraid that if we speak them aloud or even articulate them in our heads they will become unmanageably real.
Thank you for reading. I am glad people find value in it. Because I am getting tired of people not reading this and then commenting anyway, I am making a few things clear: not all of this piece is about me. That is why I said that they were observations. And this piece is not all of me: that is why I said that they were random observations rather than complete ones. If you really have to urge me to abort or keep my knees closed or wonder whether I can fax you my citizenship documents or if I really in fact have been poor because I know multisyllabic words, I would like to ask that you read the comments and see whether anyone has made your point in the particular fashion you intend to. It is not that I mind trolls so much, it's that they're getting repetitive and if you have to say nothing I hope you can at least do it in an entertaining fashion.
If, however, you simply are curious about something and actually want to have a conversation, I do not mind repeating myself because those conversations are valuable and not actually repetitive. They tend to be very specific to the asker, and I am happy to shed any light I can. I do not mind honest questions. They are why I wrote this piece.
Thank you all, so much. I don't know what life will look like next week, and for once that's a good thing. And I have you to thank.
This post first appeared on killermartinis.kinja.com
Follow Linda Tirado on Twitter: www.twitter.com/killermartinis