All day I think about it, then at night I say it. Where did I come from, and what am I supposed to be doing? I have no idea. My soul is from elsewhere, I'm sure of that. And I intend to end up there...Who looks out with my eyes? What is the soul? I cannot stop asking. If I could taste one sip of an answer, I could break out of this prison...I didn't come here of my own accord, and I can't leave that way. Whoever brought me here will have to take me home.

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09 October 2013

Participate in AASPIRE's study, help research, and earn a $30 Amazon gift certificate!

Are you on the autism spectrum?

Be the first to try out a tool that may improve your healthcare

AASPIRE is a partnership between people on the autism spectrum, researchers, healthcare providers, and family members. We have created a healthcare toolkit to try to help people on the autism spectrum get better healthcare. We now want people to try it out in real life.
You are invited to participate if you are an adult on the autism spectrum, live in the U.S., and have a primary care provider or regular doctor. (You may also participate if you are a support person for an adult on the autism spectrum who cannot participate him/herself.) 
We will ask you to try out our online healthcare toolkit.  As part of the study, you can create a personalized accommodations report to help your healthcare providers understand how to better serve you.
You will also have access to a website with information and worksheets about things like
·         how to prepare for appointments,
·         how to communicate better with your provider,
·         how to follow up after a visit, and
·         what your rights are in healthcare.
You will take a 20-minute survey before and after using the toolkit. With your permission, we'll also ask your provider for feedback on the toolkit.
If you take part in the study, you will receive a
$30 Amazon.com gift card or check.
To learn more, go to www.aaspire.org/healthcare. You can also contact Angie at (503)725-9634 or studies@aaspire.org.
OHSU IRB #5580
Principal Investigators:
Christina Nicolaidis, MD, MPH, Oregon Health & Science University
Dora Raymaker, MS, Autistic Self Advocacy Network